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Medical and Education

This forum is for questions and answers you have have about medical or educational concerns with children who have Down syndrome.

Subject:  Re: Re: Re: Re: Re: Trouble Feeding Baby Sofia
Reply to Message 		From:
Mike
Sent: 2002/11/12 7:51:59 PM
Message:
Hi Irv
Nathaniel didn't eat by mouth when he was frist born as he was rushed to the childrens the next day & had his first of many surgery's when he was 3 days old. With all his breathing issues he had a hard time sucking, swallowing & breathing at the same time. One good thing when he was 6 months old he did start to feed with baby food but he asperated it into his trach tube & since then he wont touch anything. But he will in his own time.
are you all from Calgary? If so we have a monthly meeting that you should come to. They are held on the 3rd Wednesday of every month. The Nov meeting is on education stuff for the older kids. But the Dec meeting is a good one it is a wine & cheese social night when a lot of our members get together to see everyone & all the kids & have a good gab session. If you can make that it would be nice to meet you all & bring the baby if you can as all of the perents like to see new baby's Talk to you soon
Mike



> > Your welcome Natasha
> > If you have any questions in the future ask away. If we can help we will.
> > Mike
> >
> Another question Mike. Before his surgery, did Nathaniel take milk
> by mouth? We are trying to establish whether this might be temporary
> or ongoing for Sofia. Sofia ate well before surgery -- it was after that
> all of this problem started. We're kind of hoping that the amount
> she takes from the bottle now (usually 15 or 20 ml) might increase
> with time.
>
> Thanks again -- your help is invaluable to us. We realize that each
> child is different, but like all parents (even us adopted 'Grampas')
> hope for the best with time. Whatever the case, Sofia is a gift
> from heaven, and a lovely little child -- we'll deal with her one day
> at a time, giving her lots of love, and getting it back in turn. When
> she smiles, I absolutely melt!
>
This message is a Reply to: Re: Re: Re: Re: Trouble Feeding Baby Sofia from Irv (Sofia's 'Grampa')

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